View Article |
Clinical spectrum of children receiving palliative care in Malaysian Hospitals
Chong, Lee Ai1, Farah Khalid2, Teik Beng Khoo3, Siao Hean Teh4, Geok Lan Kuan5, Aina Mariana Abdul Manaf6, Emieliyuza Alias7, Chae Hee Chieng8, Abdul Shukor9, Jia Jia Wong10, Hadibiah Razali11, Gek Bee Ong12, Zainah Shaikh Hedra13.
Introduction: Awareness for paediatric palliative care has
resulted in the impetus for paediatrician-led palliative care
services across Malaysia. However, there is paucity of local
data on patients receiving hospital-based paediatric
palliative care. We aim to review the clinical spectrum of
patients referred to these services.
Methods: An observational study of children aged between
0-18 years receiving palliative care at 13 hospitals between
1st January and 31st December 2014 was carried out.
Results: There were 315 patients analysed, 90 (28.6%) and
46 (14.6%) were neonates and adolescents respectively. The
main ICD-10 diagnostic categories for all patients were
identified to be ‘Congenital malformations, deformations
and chromosomal abnormalities’ 117 (37.1%), ‘Diseases of
nervous system’ 76 (24.1%) and ‘Neoplasms’ 60 (19.0%). At
referral 156 (50%) patients had holistic needs assessments.
Patients with ‘Diseases of nervous system’ were assessed
to have significantly more physical needs than the other two
diagnostic categories. Majority of patients who knew of their
diagnosis and prognosis were those with malignancy. Over
a fifth of referrals were at their terminal admission. Of 144
who died, 111 (77.1%) had advanced care plans. There was
bereavement follow-up in 98 (68.1%) patients.
Conclusion: Patients referred for palliative care have varied
diagnoses and needs. To ensure all paediatricians are
competent to deliver quality care to all children, further
education and training initiatives is imperative.
Affiliation:
- Hospis Malaysia, Malaysia
- Hospis Malaysia, Malaysia
- Hospital Kuala Lumpur, Malaysia
- Hospital Miri, Malaysia
- Hospital Melaka, Malaysia
- Hospital Port Dickson, Malaysia
- Hospital Sultanah Aminah, Malaysia
- Hospital Sultanah Aminah, Malaysia
- Hospital Segamat, Malaysia
- Hospital Pakar Sultanah Fatimah, Malaysia
- Hospital Sibu, Malaysia
- Sarawak General Hospital, Malaysia
- Hospital Sultanah Nora Ismail, Malaysia
Download this article (This article has been downloaded 206 time(s))
|
|
Indexation |
Indexed by |
MyJurnal (2019) |
H-Index
|
0 |
Immediacy Index
|
0.000 |
Rank |
0 |
Indexed by |
Scopus (SCImago Journal Rankings 2016) |
Impact Factor
|
- |
Rank |
Q3 (Medicine (miscellaneous)) |
Additional Information |
0.248 (SJR) |
|
|
|